Information medical links and a message board. The true story of a one family's struggle with this illness.
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http://www.2endure.com/
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A clearinghouse for ataxia-telangiectasia information including disease information scientific research clinical and family support and
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http://www.atcp.org/
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BDSRA goals support groups local chapters and resources for parents and families of Batten Disease patients.
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http://www.bdsra.org/
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National Magazine Fundraiser Order your subscription now online at www.QSP.ca.
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http://www.caws-can.org/
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Chromosome Deletion Outreach Inc. is a current member of the Genetic Alliance and the National Organization of Rare Disorders
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http://www.chromodisorder.org/
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Information about the organization and the disease. Includes FAQs newsletter handbook meeting schedules and support group data. (Include links to
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http://www.vhl.org/
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is a family support organization which exists to reach out provide help and offer hope to everyone touched by this genetic condition.
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http://www.cdlsusa.org/
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If you are not taken there automatically you may click here to access the new page.
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http://www.nfjgd.org/
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The Centre for Computational Biology at the Hospital for Sick Children
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http://www.bioinformatics-canada.org/
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Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients
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http://www.cysticfibrosismedicine.com/
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